Project on the consequences of lifelong care and monitoring on the health of people living with SCI – or the lack of such a system! Preliminary conclusions of the group were presented at NoSCoS in Helsinki in May 2013. The work was also presented as a poster at ISCoS 2013 in Istanbul The final report was published on the ESCIF website late 2013.
2012 – 2013
A European survey into how SCI treatment centres and clinics are coping with the growing problem on multi- resistant bacteria. The study lays special focus on the consequences for the rehabilitation and monitoring of people with SCI. The results from the Nordic countries were presented at the NoSCoS meeting in May 2013. European results were presented in a poster at ISCoS 2013 in Istanbul. The final report was published on the ESCIF website late 2013.
2011 – 2013
In preparation for the ESCIF congress in 2012, ESCIF and the SCI umbrella organisation in Italy, FAIP, instigated a study into the consequences of the economic crisis on people living with SCI in Europe. The initial results of the study were presented at the ESCIF SCI consumer workshop at the ISCoS meeting in 2012. The final report was published on the ESCIF website in the spring of 2013.
2011 – 2012
Project on the quality of SCI rehabilitation and management. The ESCIF statement on the quality of SCI rehabilitation and management was presented at the ISCoS meeting in London 2012 as part of the first SCI consumer workshop to be held as part of the ISCoS scientific meeting.
ESCIF established the ESCIF SCI research group The primary goal was to set up a new section on the ESCIF website that would warn people living with SCI against advertisements for “unproven therapies” that abound on the internet, while providing relevant information about scientific research into regeneration The group presented its work at the NoSCoS meeting in 2011 and at the 2012 Interdependence meeting in Vancouver, Canada In the autumn of 2013, the group will send the first of a series of updates on regenerative research
2010 – 2012
ESCIF was invited by Coloplast to arrange and chair a workshop at the ISCoS meeting in New Delhi in 2010. Following the workshop, ESCIF took the initiative to establish a Global SCI Consumer Network. The Network was launched officially at the ISCoS meeting 2012 in London.
See www.globalsci.net for details.
2008 – 2010
Project to elaborate the policy statement: working groups on the establishment of SCI registries, the centralisation of SCI treatment, rehabilitation and care, and peer- counselling Preliminary results presented as a poster at ISCoS meeting in Florence, Italy, in October 2009 Reports from the working groups were presented at the ESCIF Congress in Lobbach in 2010 The final report on centralisation was endorsed by the Assembly of Delegates during the 2010 Congress ESCIF was invited to arrange and chair a hearing on centralisation at the NoSCoS meeting in Gothenburg, Sweden, in 2011
2007 – 2008
Formulation of ESCIF policy statement The policy statement was endorsed by the Assembly of Delegates in 2008 during the ESCIF Congress in Croatia.
2006 – 2007
Information-gathering project among ESCIF member countries Presented at NoSCoS/ISCoS meeting, Iceland, in 2007.