Betwixt and between the temptation of unproven commercial therapies and the complexity of scientifically-driven clinical trials.
Should people accept their new life situation after a spinal cord injury and make the best out of it? Or should they try everything and anything to get better and possibly reverse paralysis? These two ends of the pendulum often seem to be the only possibilities after an SCI. Countless people go abroad to receive the latest treatment, often depending on the latest hyped up news about SCI therapies. What are the results? How do you recognise a commercial therapy from a more scientifically driven experimental treatment? Why should you choose one over the other? During this presentation, we will quickly review the latest SCI research landscape and hint at what could be done to optimise the patients choices.
Next ESCIF Forum: Monday June 13th, 6pm
Please register to the Forum with the following link:
Presenter: Stig Langvad, RYK – Spinal-Cord Injured Denmark
Transanal Irrigation as regime for bowel management can be a “game changer” for people with a spinal-cord injury and paves the way for higher quality-of-life. Research shows that the bowel significantly affects daily life physically as well as psychologically; and research shows that more than 50% should consider contacting their healthcare professionals and discuss to change method of bowel management. Transanal Irrigation is unknown to potential users and many healthcare professionals. It is not a normal element of the follow-up procedures following a spinal-cord injury. RYK – Spinal-Cord Injured Denmark has published a set of videos to enlighten on this regime for bowel management.
Next ESCIF Forum: Monday September 12th, 6pm
ESCIF organises 3 – 4 free Zoom events per year. The key of these events is to generate added value by facilitating knowledge transfer and information exchange among all persons interested in SCI. If you have missed a ESCIF Forum you can find the presentations as PDF below.