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News

9 September 2011
ESCIF has received an invitation to a very exciting, ground-breaking conference in US next month. The invitation was sent by Marilyn Smith who is one of the founders of Unite 2 Fight Paralysis. Read the invitation ... To our friends at the European Spinal Cord Injury Foundation, I write to invite you to attend a very important conference that offers a unique opportunity for anyone interested ...
28 June 2011
Since the congress in De Rijp, the Executive and the members of the SCI research group have been discussing the idea of releasing a statement on SCI regenerative research. Although the ESCIF Statutes clearly express the federation’s support for all research that will enhance the quality of life of people living with SCI, no specific mention is made of research aimed towards functional recovery. ...
14 June 2011
Jane Horsewell and Frans Penninx attended the ASIA/ISCoS meeting in Washington DC last week. The primary aim of the trip was to promote support for the creation of a global SCI consumer network among SCI consumers and organisations in America and Canada, and to investigate funding possibilities for this initiative. Delegates at the conference were invited to attend a meeting in the afternoon of ...
14 June 2011
The World Report on Disability, a joint publication of the World Bank and the World Health Organization (WHO), will be launched at the UN General Assembly in New York on 9 June 2011 in the presence of the WHO Director-General and the Vice-President of the Human Development Network at the World Bank. See attached press release.
30 May 2011
Jane Horsewell and Frans Penninx will be attending the ASIA/ISCoS meeting in Washington DC to promote the formation of a global SCI consumer network. In addition to meetings with potential sponsors and other interested parties, Jane and Frans are holding a meeting on Tuesday, 7 June to discuss the network with representatives from consumer organisations and SCI professionals. See the invitation... ...
23 May 2011
The Congress and Assembly of Delegates 2011 took place last week in De Rijp, the Netherlands and was hosted by the Dutch organisation Dwarslaesie Organisatie Nederland. The Congress was held at the Hotel De Rijper Eilanden, north of Amsterdam, which provided an ideal and accessible setting for the meeting of around 90 participants. Considering “Quality” ... ESCIF was pleased ...
12 May 2011
This was the unanimous conclusion of the delegates at the ESCIF Congress 2010 following a panel debate and discussion on the current state of research into functional recovery following SCI. It was felt that many private clinics offering “unproven therapies” are simply preying on the desperation of people with SCI, especially those who are newly-injured or newly-diagnosed. A working ...
11 May 2011
ESCIF working group on centralisation of treatment, rehabilitation and life-long care of persons with spinal cord injuries finished their report a while ago. The report was presented at the ESCIF Congress 2010 and after that it was sent to various experts for review and comment. It is now ready to be published and to be used in different countries to support centralisation of SCI care. The report ...
22 March 2011
We are delighted to announce that we have received over 70 registrations from 22 countries for the ESCIF Congress in De Rijp! Although the deadline for “early-bird” registrations was 1 March 2011 – it is still possible to participate. If you are interested in finding out more about the congress and the programme this year, please follow the link under “ Welcome ...
18 January 2011
The Minister of Health and Social Services in Finland, Paula Risikko, has confirmed that the future treatment, rehabilitation and follow-up care of people with SCI will be centralised in three units. The chairman of the Finnish SCI consumer organisation, Jukka Kumpuvuori, commented that the new organisation will, at first, only apply to persons with traumatic spinal cord injuries but added “still ...

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